With the Holidays coming up, our Aruba vacation and a few events, I don't know how I'm going to survive them with this pain? The pain is not as bad all day if home (which I always am) hardly talking and eating soft foods. I wear my mouthguard all day and night and rub blue BioFreeze on my face throughout the day. But when people come over and socialize the pain sets in with a vengeance within 10 minutes. All we do is talk to friends in Aruba so how will I get through this?? I can't tell everyone I can't talk, that sounds ridiculous but I will have to do what's best for me and this pain!
I don't understand why this has happened? I don't understand why there is no cure and they can't get my jaw disc back in for good? I don't understand how the doctors and surgeons expect us to live like this?? This is no life! This is an unhappy, pain each and everyday, isolating, lonely life and for some reason us tmj, tmjd, jaw disease suffers cannot be fixed??? And I read posts of sufferers being so depressed, wanting to give up and hating their lives and some say they can't go on anymore:(
Wish there was more time spent finding cures for us!!! Chronic pain that causes you to sit in the house all day everyday not talking and hardly eating, on a heating pad or ice pack all day, some taking tons of meds, some wanting to give up, is NO way to live and very very unfair! It could not be worse for us, I'm sorry but if you haven't felt what we feel you wouldn't understand!
Luckily I am happy this time around and stronger and more positive and this hasn't brought me down a great deal typically. Of course I have good days and hours and bad ones. But in 2010 when this was so much worse and the doctors and dentist had me on 9 different meds, I was very very depressed and I wanted to give up. I was done!! And if that fall on my face didn't happen in October of 2010...I would not be here!! As crazy and terrible at that sounds, this is how tmj, tmjd, chronic pain and jaw disease sufferers feel and it is not fair!!! That fall saved my life!! Now going through this all again I don't rely on meds to get me through I rely on strength and hope and support and amazing TMJ and TMJD Facebook pages!! And my family and some great friends!! And of course not talking, a mouthguard, hardly eating...you get it...... AWFULNESS!! But I wake up each morning, thank God for another day and fight through!
Don't ever give up my sufferers!! Fight the good fight and pray and reach out to friends and family when your feeling down!
Maybe one day they'll have a cure for us but until then keep on fighting and I'm here for anyone who needs me!
Xxoo
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